In 2020, the Consortium for Science, Policy & Outcomes (CSPO) at Arizona State University began an multi-pronged initiative to bring public values into current conversations on the ethics of and policy around human genome editing. As a first step, CSPO partnered with the Kettering Foundation to develop a forthcoming issue guide that can be used for community-based, deliberative conversations about human genome editing.
Using CSPO’s Participatory Technology Assessment (pTA) method, the project team, which includes the Museum of Science, Boston, will host a series of large-scale public deliberations on human genome editing in three U.S. cities through 2022. The deliberations are part of a larger project funded by the National Institutes of Health that aims to develop forward-looking, democratically derived, and ethically reflective processes useful in preparing for possible futures related to human genome editing.
The project will support a Global Citizens’ Assembly on Genome Editing in 2021, hosted in cities around the world, and convened by the Australia-based Centre for Deliberative Democracy and Global Governance. CSPO will serve as the national organizer for the United States, alongside global partners including the United Nations and the World Health Organization. CSPO will work to incorporate outputs from U.S. public deliberations into global-level findings for distribution to decision makers at the national and global scale.